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Marfan syndrome affects an estimated 1 in 5,000 people regardless of race, ethnicity, or gender, and experts estimateÌýthat nearly half the people who have Marfan syndrome do not know it.Ìý Without proper diagnosis and treatment, they are at high risk for an aortic dissection and sudden death.Ìý

Awareness of Marfan syndrome and related conditions leads to early diagnosis, treatment, and an extended lifespan. The most powerful way we can raise awareness is through you, our volunteers. Your circles of relatives, friends, co-workers, and neighbors, your knowledge, your personal journey, and your commitment cannot be matched by anyone outside of our community.

February is Marfan Awareness Month and you can do your part from the comfort of your own home on social media. Join ¾«¶«Ó°Òµ’s Charities and our member, The Marfan Foundation, by participating in the during February.Ìý

1. Give through your workplace: You canÌý. Check with your employer to see if they will double your donation with a matching gift. Don’t have a program?ÌýÌýto have your employer contact our team about bring employee giving to your workplace.Ìý
2. Raise aweareness: Help The Marfan Foundation raise awareness about Marfan syndrome by using the library of ready-to-use social media graphics .
3. Educate Yourself:ÌýThis month, The Marfan Foundation hasÌýtwo webinars on the basics of Marfan syndrome. On February 9, we will focus on medical management with two members of our Professional Advisory Board, Dr. Shaine Morris, pediatric cardiologist, Texas Children’s Hospital, and Dr. Chris Malaisrie, aortic surgeon, Northwestern Medicine (). Then, on February 16, we will have a Personal Perspectives Panel with members of the Marfan community talking about how they coped when first diagnosed. ().

There are many ways for you to take part in Marfan Awareness Month and every little bit helps. for a list of more ways to support The Marfan Foundation.